MCAS: Mast Cell Activation Syndrome

What is this? Allergic to BULLSHIT

“The term “mast cell activation syndrome (MCAS)” is finding increasing use as a diagnosis for individuals who present with signs and symptoms involving the dermis, gastrointestinal track and cardiovascular system; frequently accompanied by neurologic complaints. Such patients often have undergone multiple extensive medical evaluations by different physicians in varied disciplines without a definitive medical diagnosis until the diagnosis of “MCAS” is applied. However, “MCAS” as a distinct clinical entity has not been generally accepted nor do there exist definitive criteria for diagnosis.”[1]

I’m fast forwarding through years of specialists and stories to get you to this point. This is what it is, well sort of. The best way to explain it, is I’m allergic to everything. Essentially, I’m allergic to bullshit, I’m allergic to your bullshit, my bullshit, environmental bullshit… You get the idea.

Best way to describe it, is like this. Today, I want to expose myself to extreme heat, and then work out, by the time I decide to do anything else, take a cold shower (you’re going to get hives) or eat your favorite high histamine meal, or have a margarita, ( be prepped with your epi pen, you may be welcoming anaphylactic shock into your dinner plans) unless you take all the antihistamines necessary to just walk out into the sun.

A basic sunburn makes my face swell and turn me into a sad attempt at looking like Frankenstein. My eyelids, forehead, skin swelled. For the ones who passed 7th grade science…. remember a cell with a nucleus? Remember our skin cells are made up of 7 layers of skin cells? Imagine all 7 layers of cells, swelling like 10x their size. It felt like my skin was a mask on my face, I could do nothing but ingest more antihistamines to get rid of the swelling. ALLERGIC TO A SUNBURN… I think of all the systemic diseases out there, this is the most bullshit illness to deal with. Happiness can easily get sucked OUT OF EVERYTHING you ever experience or have experienced in your life, with one accidental exposure, or spending one extra ounce of energy where it didn’t count that day.

AND IF YOU ARE STRESSED….. just forget about it that day, you might as well stay at home. Each added on additional stressor from that point will shoot you in the foot for days, you’ll wind up in bed anyway, praying to be able to sleep for the following two to three days to recuperate. In fact, sleep is your friend when you have Mast Cell Activation.


Right After the Burn
The Morning After
Swelling Started

[1] Akin, Cem et al. “Mast cell activation syndrome: Proposed diagnostic criteria.” The Journal of allergy and clinical immunology vol. 126,6 (2010): 1099-104.e4. doi:10.1016/j.jaci.2010.08.035

So it begins…

After that fateful day of the tornado, I did the one thing that NO ONE ever warns anyone about, especially if you are an asthmatic or allergy sufferer. DO NOT GO OUTSIDE (if at all possible) a few days after a tornado, 3 days is safest to be exact. By this time, you probably have realized, that I don’t listen to many safeguarded warnings anyway, so it would have been lost on me. We had gone outside to review the damages from the tornado. That was a BAD idea to say the least.

I ended up with a severe lung infection right after that. I suffered for months, and we were at a weird point in life, where that was the approaching transition of our healthcare system, and we didn’t have healthcare at that point. I literally was suffering some severe sinus/lung infection from the exposure to all the contaminates that were floating around in the air. Now that we are post-pandemic, my realization that I shouldn’t have ever walked out into that air without an N95 at least to filter some of the contamination would have been smart; but no one was thinking about that at the moment. In fact, even with the most recent tragic events of chemical spills, and fires from industrial warehouses, I’m certain there’s still others out there that don’t consider of safeguarding themselves from the exposures with a mask. (We now despise the thought of those things being on our faces again.) My experience is, they should be in your emergency kits for every purpose from now on, especially if you are a fellow “Mast-er” (Mast Cell Activation Sufferer).

This image has an empty alt attribute; its file name is girl-face-mask.webp

When I’m referring to contamination, I’m literally saying anything from mold spores on the ground, to random chemicals in neighboring properties mixed with rusts, and various shreds of building materials are now floating particulates waiting to be inhaled. My lungs CONSUMED it all. This in turn, gave me this crazy infection, and then I start breaking out in hives. Weird rashes would pop up when cold and heat hit my skin, when I took a shower, the water hurt my skin similar to a full body tattoo. I recall looking at my husband one morning and asking him, “Why does the water hurt my skin?” When leaving the house, I had to have every inch of my skin covered, in fear that more welts would appear out of nowhere, I was living a literal nightmare. My go to meds were my albuterol inhalers and it took me a month or so before I broke down and drug my husband and I to an urgent care clinic to get antibiotics. He was sick too, but not the sick that I was, his was a minor sinus infection, congestion.

It was important to share that with you, because not only was I under a “Stress response” type situation, unbeknownst to myself, my mast cell activation syndrome became ACTIVATED.

That’s my wonderful awesome cousin on the left, I’m on the right at the height of my illness. My aunt in the back is pulling bunny ear shenanigans. Love them dearly, some of my biggest supporters, the let me enjoy that weekend although I spent much of it sleeping not being able to communicate. This photo means so much to me, the love I received even though I was a shell of myself.

The Darkness

November 2013 tornado came and went and left that damn darkness behind and I was ever so frustrated. I called the insurance company and told them, and they sent me a booklet of information and told me that they were too busy to send an adjuster to look at it. In fact, every vendor we called gave us similar responses… and then the winter storm blew through our little town two weeks later, leaving us under 3″ of ice until the following spring. No one came out to look at our house, even though it seemed there was no obvious signs of major damage other than the trees and branches on our roof.

Since it was frozen, even the roofers and adjusters didn’t want to be on said roof in fear that they would get injured by sliding off, so it stayed the way it was… because it didn’t look like there was anything wrong. The tornado seemed to “jump” between our house and the neighbor’s house. How in the world this happened, we will never know, and we counted ourselves lucky. Over time, I realized the darkness would eat me alive. Not everything was fine, NOT AT ALL. Did you know tornados that jump your house can miraculously suck nails out of your roof, without budging the roofing material? Yeah, that happened, and it would TAKE YEARS to figure out that there was a problem. Years that let the darkness grow, and turn into neurotoxic mold, that nearly killed me!?! Yeah, that is a thing!

Oh, and neat little factoid, if your insurance company never gets an estimate, and they never come out to look at it, and your house is growing neurotoxic mold because of it, they don’t cover it. They won’t cover the fact that you almost lost your life, and nearly died, or the roof that you need to put on your house. Nope, that’s all your fault, entirely up to you. In the meantime, while you are suffering from a host of weird symptoms and feeling demented, literally having neurological meltdowns, and tremors, and seizures, and various other weird symptoms that no one can diagnose before you ever find the HORRID problem hidden in the darkness growing inside your home.

Yes, I’m allergic to bullshit.

If you have found yourself here, you are allergic to the bullshit as well. I’m a mom, an Entrepeneur, a child taxi driver, a Baker, a Manager of life. So far, all I’ve managed about this life is figuring out I have no tolerance for the stupidity and drama of the bullshit that life brings to the table. So, if you’re ready to join me on this journey…. let’s get you started

I’ve chosen some hard roads in life, I’ve survived trauma, I’ve survived abuse, I’ve survived divorce, I’ve survived being a stepmother, and so far, I’m still surviving the remarriage (and happily I might add). Life doesn’t work out the way we like it to, but we have to fight and reach out for the happiness that we want, and you may lose your mind a few million times until you get there, but honey; YOU WILL GET THERE!

So now that you know a little of my backstory, let me introduce you to why I’m here and how I got here. Welcome to my world of mysterious health symptoms and literally losing my mind, almost dying, and coming back from the brink to tell you all my story! I hope that in this blog you will find the ups and downs just as enjoyable as I have and give you hope and love and light along the way.

So grab your coffee or drink of your choice and join me!!! We have shenanigans to get involved in!