Tag mast cell activation syndrome

Rutin: Why it was so important to my journey!

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Now being studied for Obesity and Diabetes!

This amazing supplement was a turning point in my journey for me. Once I had stumbled upon rutin looking for ways to eliminate oxidative stress in my brain, it very literally gave me a whole new focus. I coupled it with Forskholii to boost myself with even more bioflavonoids. The energy and focus without the crash, on top of the stabilizing of my mast cells that I had yet to find anywhere else. I knew the over-the-counter medication assisted in preventing my symptoms, but once I added the Rutin, it was like night and day. I physically saw a difference, felt the difference, and I sit here writing to you, to tell you, it’s worth it. So I’m going to fill you in on this miracle supplement that I had found.

I had already identified a few triggers that I knew may have been a cause to my situation and my brain, that being neurotoxin build up, but also the fact that I worked in the automotive industry for over 20 years and I was exposed to a lot of exhaust fumes over the years. Coupled with the fact that I’m kind of a country bumpkin living out in the county being exposed to fields being sprayed along with all the outdoor molds and pollens that exist, it just seemed worth it to try.

Rutin was talked about years ago, when they discovered this plant flavonoid in the skins of apples and fruits with its many health benefits. This vital phytochemical, that had been discovered and studied to show that it assists in helping with a number of chronic diseases such as cancer, hypertension, and blood pressure.

This flavonoid has now taken on a recent focus for not only obesity but also diabetes. “Several lines of evidence suggest that flavonoids that originated from vegetables and medicinal plants have beneficial effects on diabetes by improving glycemic control, lipid profile, and antioxidant status.” Ghorbani A. Mechanisms of antidiabetic effects of flavonoid rutin. Biomed Pharmacother. 2017 Dec;96:305-312. doi: 10.1016/j.biopha.2017.10.001. Epub 2017 Oct 7. PMID: 29017142.

Now scientists have been studying Rutin’s effects on obesity and diabetes

“Rutin ameliorates obesity through brown fat activation.” https://pubmed.ncbi.nlm.nih.gov/28049156

Rutin

” Increasing energy expenditure through activation of brown adipose tissue (BAT) is a critical approach to treating obesity and diabetes. In this study, rutin, a natural compound extracted from mulberry and a drug used as a capillary stabilizer clinically for many years without any side effects, regulated whole-body energy metabolism by enhancing BAT activity.” https://pubmed.ncbi.nlm.nih.gov/28049156/

While diet and exercise have remained a standard practice in treating obesity and diabetes. There may now be another source available in assisting patients when the standard practices are not doing enough.

This bioflavonoid and vital phytochemical can help with fighting inflammation and reducing oxidative stress along with boosting our circulation and repairing cognitive impairment from oxidative stress. Depending on where you look for Rutin, it can be found in an impressive list of produce including most citrus fruits, apple peels, asparagus, onions and even olives.

Rutin is a derivative of Quercetin and is also a natural Mast Cell Stabilizer when it comes to histamine intolerances and allergies. For some, this bioflavonoid is a great option that is bladder friendly as well, it has all the benefits of citrus and acidic fruits without all the aggravation to your bladder and gastrointestinal tract, making it even more attractive to patients with multiple chronic illnesses. With any supplements it is always recommended to consult your physician for advice on whether this would be a great option for you.

Pissing my Pants Laughing

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A NEW DEVICE to add Amusement to our days! Muscle Pain Relief for Fibromyalgia!

I woke up with a migraine yesterday. This is a normal thing that happens occasionally, and when I first started seeing a neurologist, he asked me if I had experienced dramatic migraines. When in fact, I hadn’t as frequently as he said I should have by the point, and condition that my brain was in. I do however wake up with the sinus headaches, and then the muscle tension migraines.

Yesterday, happened to be one of those muscle tension migraines that literally had every muscle in my shoulders tensed up that sent pain shooting into my neck and brain. I was in dire straits, that I was desperate enough to call and recruit my mom to accompany me to the massage parlor (I affectionately refer to them as “happy ending places”) to get the kinks worked out. My downfall, she had already seen her chiropractor the day before, but she texts me back with, “I’ll be there in a few minutes.” Wouldn’t you know it she showed up with this neat little device.

I’m telling you, while this thing is marked down, you literally just need to buy it, even if it’s for comedy relief. This little device, the Cervical Vertebra Massager rocked my world, and let me tell you how.

Insert a knock at my door, my mother coming to my rescue, telling me this is the best thing since sliced bread, it will save me from the pain I was enduring. This was one of those all my shoulder and back muscles were so cramped that any pain had to be better than the pain that I was enduring and pulling on all the headache muscles in my brain. I was down for anything.

CERVICAL VERTEBRA MASSAGER WITH USB CHARGER!

She pulls out this little sticky patch with “electrodes” and then snaps this cervical device that can be recharged by USB, and slaps that puppy on my back right across the base of my neck. Now we aren’t doctors, but I’m going to tell you, we don’t play around when it comes to this kind of pain, we go to the ROOT of the problem always. She hits a button and asks, “You feel that?” “Nope, nothing.” I reply. She hits a button again and says, “how about that?” I said, “Nada.” She hits a button again and as I’m proceeding to say, “Is it on?” a jolt of electricity buckles me over, throws me forward and pops my neck in an instant, as I scream a slew of profanities, crossing my legs and praying I don’t pee all over the floor.

“What the hell you put on me, that hurts worse, than a dog shock collar!” as I am screaming, laughing, and trying not to pee myself. It’s pulsating the electricity through my muscles with fierceness. With laughter and tears in her eyes, “I’m sorry, I didn’t mean to turn it on that setting! Do you want me to shut it off? Oh my God!” as we continue to laugh until we are crying. “No, No, I’ll be fine, just leave it on, the worst is over.” The laughter continued.

I vaguely remember accusing her of damn well knowing what it would do, and that she should have videoed that mess to which we laughed some more. I’m pretty sure that if I had an Echo Show with Multiple Camera Views set up I am telling you though, that was probably the most relief I have felt from Fibromyalgia and Neuropathy pain in years. After removing the device and 12 minutes of therapy, I suggest you apply some Lidocaine of some-sort to the area, just to relieve residual pain, especially with neuropathy, so your skin doesn’t hurt. Icy Hot is a good resolve to that dilema.

View Many Cameras at Once With Echo Show!

Later that night, as my husband was arriving home and I was collecting the box from the counter I received a text from my mom. “Warning, Do not use it as a torture device!!!! LOL” My reply, “LMAO how’d you know? David just got home!” She just KNEW that I was going to torture my husband just for giggles. Little did I know, the joke would be on myself AGAIN before the end of the night.

Fast forward after I showed my husband the power of said device, that I had to charge it. Then I applied it to my right shoulder that was still acting up just a tad bit. Turned it on, but when the patch that I applied to my skin that holds the device in place came up a little, I reached back to readjust while the device was on, and my finger got stuck on the pad electrode, and I was grounded in a complete circle, so my arm was flexing glued to the pad, sending and electrode from my shoulder to my fingertips and back through, leaving me screaming, “Help, Help, Help me David, shut it off!”

I highly advise, never use this device without an extra pair of hands handy to shut off that button in places you can’t reach. If you need new sticky patches, you can order those too! I’m telling you, I’m the test subject here, and if it’s working for my mom, and myself, as long as you have assistance during use. You got to have this in your artillery. My hubby also pointed out, this thing is powerful enough, if you were brave enough to apply it to your abdomen, it’d probably give you a heller ab workout as well, but that’s not what it’s made for.

***NOTE: There are two versions to this Massager, the battery operated and the USB charged one. Battery operated has less jolt and less power to it, however, USB charging is what my mom used on me. We have both, so for a tame less shocking experience I suggest battery operated, but for those massive muscle cramps, only USB will do for DEEP TISSUE massage.

The Easter Egg Hunt for Healing!

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Looking for the answers on how to heal.

Swinging an Easter basket in one hand wearing her new yellow frilly dress, and black shiny patent leather shoes running through the tufts of thick green grass, searching frantically for colorful candy filled plastic easter eggs, that was me. Each egg found would come with candy, money, or a prize, and never left a recipient in disappointment with each brightly colored find. Family who hid the eggs would even get devious, sometimes you had to search high and low, even though I was a shorter version of most humans. Easter was so much fun! I also learned an invaluable lesson from Easter Egg hunts. Never leave any stone unturned, check every nook and cranny, even check the gutters and trashcans.

Plastic Easter Eggs
Easter Baskets for Adults & Children

My search for knowledge, sincerely comes from what I learned Easter Egg Hunting, and I implore you and our younger generations to do the same. When it comes to your health, when it comes to life, or anything that you need to gain knowledge for or from. One valuable piece of wisdom my father imparted on me as a child was, “No matter what the situation, your EDUCATION can never be taken from you. No one, the only one that can deny you EDUCATION is yourself.” I’ve carried that with me forever, and I share that sentiment with any human being I can.

My search for knowledge about my health, started at home. Gutters were first, I started looking at my bowels. What I was consuming and what was coming out are VERY important. Then, I began to search higher. Once I knew I wasn’t poisoning myself, to the best of my knowledge, I got online and started Googling. The one thing everyone tells you not to do, but remember, I don’t listen. I was looking for answers on how to heal my brain, and how to thwart my Mast Cell reactions and all the histamine my body was producing. I needed to do something and pronto.

I know what you are saying to yourself, “Why didn’t she go to an allergist?” Funny story, I did that too. I was allergic to practically everything, and then I was allergic to the steroids that was supposed to counteract the reactions to the shots. I went in more miserable than when I came out. It wasn’t working, or worth the misery I was putting myself through. All the allergist wanted to do was keep giving me the shots, even that doctor didn’t really look into WHY my body seemed to react to EVERYTHING. I fired that doctor too.

My tunnel of light was closing quickly, it’s hard to explain. In a sense, I knew I was losing my thought processing ability, I was in fight or flight mode, just trying out how to figure things out, to save my life. (This also raises histamine levels, cortisol levels, and sends you into a stress histamine response as well. With each waking day, I knew I was step closer to losing my grip on reality.) At one point, the only thing I could manage to do was crossword puzzles, and that took FOREVER just to get one done. I used to be an ace at those as a child, I could have one done in less than 3 minutes.

Popped open my laptop and went online to find “Easter Eggs” of information. I searched many things, but educating myself on histamine was the start.

Air Fryer, Netflix, Prime Video, and TikTok Ads

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The daily grind of having chronic illness.

One day, my caretaker brought home an air fryer and changed our world forever. In the middle of my illness, I had all but quit cooking, and left it up for everyone to pretty much fend for themselves or my husband to cook when they got home. This neat little invention gave my family a new lease on life, as I resigned to my illness sitting on the couch either scrolling aimlessly through Tik Tok, or watching movies on Prime Video or Netflix.

In our home, we didn’t fry food often, if ever. Long ago, I had figured out that fried foods didn’t agree with me all that well, and for obvious reasons, I sure didn’t want to clog the arteries of my loved ones. Insert the air fryer, and our world was changed. We have upgraded to two different air fryers since the original one mind you. We literally have to have one to feed at least a family of four at any given time. We opted for a pretty awesome one, that we refer to as a “hobby oven” because it will do pizzas and various other things, rather than just air fry, it’s also a rotisserie as well.

CORSORI Air Fryer and Toaster Oven!

Anyway, I laid around a lot on that couch with hardly any energy to move, let alone enough energy to function my brain to even think about cooking. Everyone in the house was near adult age, or already adult in age, so it just made sense to make things a little easier than firing up the 6 cubic square foot oven all the time for some simple small meals or snacks.

I was actually pretty lucky to watch the transition of programming on our popular Netflix and its demise in my husband and I’s opinion. The offerings started to get smaller and less interesting to watch. So, when this latest billing fiasco came to light, it didn’t hurt my feelings much to just cancel it. For our family, it just wasn’t worth all the hype, when we can find programming for less, and after all, we already have a prime membership, why not entertain and use our Prime Video just a little bit more?

My soul purpose was to lay on that couch, and hope for the energy to get off that couch. I would crochet until my hands hurt, nap until I felt like I couldn’t nap anymore, and wait for someone to bring me food from the awesome air fryer. That was my life for several months. It wasn’t the best, but it was all I could hope for. If I woke up “above the dirt”, I was one step closer to not losing everything just yet. I am so very grateful for that.

I found myself writing notes and hoarding note pads in various places as well, so as I continue to write the book, you’re going to witness all the things I had to go through, by my notes. My caretakers and family fill me in with the rest of the information because, for a solid two years, I can honestly say, my brain did not have any ability to retain information. Swear on whatever is Holy that I have lost those years, and I may never get anyone’s birthday or ages correct ever again.

My Iced Coffee isn’t the same as yours…

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One Cup at a Time. My love for Coffee.

I didn’t like coffee at all until I was in my mid 20s and I had a friend bring me a “crappuccino” (my favorite term for cappuccino from a gas station machine). I ran around feeling super zoned and focused until the crash, and then I experienced the craving again. I fell in love.

Tie Dye Tumbler!

Actually, I had an affinity for coffee dating back to my childhood. The smell of fried bacon, eggs, and coffee radiating from the kitchen of my grandfather’s house in Kentucky. Vividly, I can remember those smells. I don’t know why but the SMELL of coffee would wake me up in the morning, it was the indicator that my parents were awake. Then, when I was old enough to figure out how to make the coffee, if I was up before them, I’d make it but never consumed it, that stuff was disgusting. Until that fateful “crappuccino” and then I was doomed, what was this life-changing deliciousness?

Little did I know that I had been slowly poisoning myself, and when I was in my most toxic flare of Mast Cell, it became very apparent that I couldn’t drink it anymore. I was ADDICTED… everything in my life revolved around whether or not I had my coffee. No one could speak to me until I had my first cup, and when I say first cup, I had a 42 oz tumbler, full of iced coffee. I would drink three of them a day! My iced coffee is not the same as yours, I promise you that. I had become a full-blown barista in my home. I had a coffee press, an espresso pot that you use on the stove, a Keurig, and eventually I learned how to COLD BREW straight up espresso. You name it, I could make it, and would if my heart desired it that day.

Handy Cold Brew Pitcher!

If the coffee in my cup couldn’t “grow hair on your chest”, it went back down the drain. I was at the point, that some of the BIGGEST chain coffee places were “okay” but still too weak for my blood. If my blood didn’t look like coffee, smell like coffee, something was really wrong. Until they actually pulled a vile of blood out one day that literally looked like left over coffee ground goo….I swore to them, “I swear I do not have a coffee IV at home, although I wish.” (They never did figure out exactly why I had alien blood that day, but it made me take a step back and look at my diet.) My addiction was actually adding to my demise.

Remember mold and yeast had infiltrated my body. Little did I know that in the U.S. they ALLOW a certain level of mold and such to infiltrate our food. It’s on the FDA website, there’s actually a scale they measure it by. For each cup of coffee I was drinking I was actually ingesting even more mold. I needed the caffeine to operate, without the benefits of the caffeine, my body just was blah, I had to eventually resort to the Green Coffee Bean Extract, because I couldn’t have the other stuff. Follow this link, if you need to have a little pick me up, with polyphenol benefits every morning without the crash! They sit out and the sun to mold before they are roasted, this is not conducive to someone now allergic to ALL THE MOLD.

I resorted to buying imported European Coffee from Amazon, to start weaning myself off of coffee, and then I went on the hunt for whatever beverage I could drink that I wasn’t allergic to or had a reaction to. Apparently in Europe, they don’t ALLOW contaminates or mold in their food, Go figure! Water even gives me heartburn. Literally learned how to Cold Brew the Coffee in my own fridge for 24 hours so that it didn’t heat up the coffee and pull the oils out of the bean. It’s the only way I can drink it from a drive thru place. The oils in the coffee bean are the most reactive and hold the most mold content, so if it’s brewed with hot water, I can’t have it. Talk about shell shock to my system. My kids would regularly warn people, including my caretaker, “Take away her coffee, and someone is going to die.” *I giggle at this because really it’s not true, but I’d get pretty darn defensive and grumpy. No one actually died, I promise.*

I guess what really got me was the cups I was using was also an issue I had discovered early on my coffee venture, to make sure I wasn’t poisoning myself indirectly. I figured out that the rubber grommets around the top of the cup, for no spill cups, they grow mold. And you BEST HAVE A SCRUB BRUSH FOR REUSABLE STRAWS, or just use disposable ones, because honey, those will grow mold too, even if you dishwasher them. Trust me.

Synbiotic Gut Health

Knocking this addiction wasn’t easy, and I ended up replacing it with something that is literally not even worthy of mentioning, it isn’t soda, but it’s an energy drink juice. I’m almost certain that it’s probably not the smartest idea at the moment, but it’s the only thing my body doesn’t have a reaction to, including my bladder. Not everyone is the same. I drink coffee occasionally now, in fact the last time I had decided to enjoy a cup of coffee in a drive thru I regretted it for two days, and I’m sure I probably will never do that again for months.

I plead insanity…Cytokine Storm Mania

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My kids can vouch for me.

Being chronically ill is likened to being traumatized all over again. On top of being a survivor of previous abusive situations, I likened my situation to triggering all of the above all at once. With Mast Cell Activation your body goes into a cytokine storm. When I mentioned being allergic to your bullshit, my bullshit, stress, and all the other junk in between, I wasn’t kidding. It’s true.

Your body has a response mechanism to cytokine storms, and once your mast cells are activated, no matter the mitigating factor, it activates my mast cells as well. Stress me out, and I lose my shit. If my body is in critical attack, I literally lose my shit… sometimes I forget everything, need to sleep, or scream. I really have no control over it. Other times I hyper react, overthink, and literally drive everyone nuts around me talking about a subject matter three or four times until they’re bored. It’s essentially like having ADHD mixed with a good dose of memory loss.

Most of my life it’s been contributed to me being annoying, obnoxious, crazy. Well essentially, I do go crazy a little. When my body is in crisis at the ER, sometimes I can black out and say things I don’t even know I have said. One critical time, the resident doctor feared even coming into the room to talk to me even before I was released.

I had went to an outdoor wedding that day, and I was just not feeling right. My husband and I had left a little early, and I went home to change clothes. Something was brewing and I couldn’t put my finger on it at that moment. I was going to the garage, and had told my husband, I needed to go to the hospital. I made it to the landing in that garage, and bam, total neurological shut down. I could speak, but I couldn’t open my eyes, I couldn’t move my body, arms and legs totally dysfunctional. My caretaker and husband tag teamed picking me up and sort of dragging me to the truck to get me to the hospital. I am ever so grateful for the wonderful family I have in my life.

That was my life changing moment in the ER. My body was overcome by mold and yeast, I was literally foaming at the mouth, the thrush was so bad in my mouth. I had taken 30 Benadryl to keep me alive, because who can freaking afford an EPI Pen at those kinds of prices, and then still have to go to the ER anyway?! It’s highway robbery to try and save your life. I was in anaphylactic shock, and I needed help.

My husband took me to the nearest ER and they stuck me directly in a Covid wing, my body had went into neurological shut down, I seized in their waiting room while checking in, yet they stuck me in a COVID wing! I was furious. As soon as my legs could work again (I’m assuming from ingesting all the Benadryl), I got up out of that bed and told the whole staff to, “Go fuck yourselves.” Not my proudest moment, because they called security and threatened to call the police until they got the IV start out of my arm. I promptly had my husband drive me to the next nearest ER.

That moment was when I really freaked out the resident doctor, and my husband really doesn’t tell me much other than, he said, “You got MEAN.” I had blacked out. The paresthesia in my veins was so bad at that point, that it took them four hours to get the IV in, and when I did “come to life” again, I was confused but not surprised they had me strapped to the bed. The turning point, I had full function of my brain again, for the first time in years, my body fully functioning like normal. I wanted to see the man who listened, and administered the treatment that saved my life that day! It took a GRAND amount of pleading with the nurses “I’m nice again, I promise.” Sheepishly the doctor came in to receive the “thank you” that he so very much deserved and appreciated, then I told him my story, and he told me to write the book.

Apparently, the mold and yeasts had taken over my body! When they Iv’d an antifungal through my veins, everything miraculously came back to me! I don’t knock the medical field in anyway shape or form, but I am a product of being mistreated over and over again, and when I say, “You can fire your doctor!” I damn well mean it! Find the ones who are in the field and ask why they started it in the first place, TO HELP PEOPLE. You treat that first appointment like you are interviewing them. Unless you are in a position you can’t advocate for yourself, NEVER RELENT to just letting them do whatever. FIGHT for yourself and your needs! However, I suggest you do it as nicely as possible. My mother-in-law always told me, “You can catch more bees with honey, than you can with vinegar.” She’s not wrong.

That day was the day, I realized, that there was SOMETHING in my Garage, that was a PROBLEM, and I set out to find why! After all, I had suffered seizures in there, and a concussion… it was time to figure out why my body had neurological problems with my own home.

I’m the guinea pig…

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My venture into being my own lab rat…

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Butea Superba is an herbal supplement that I recently discovered. Let me tell you if you click the link above, you can purchase and partake in the said herb. Throughout my venture of getting better I’ve came across various supplements that have helped me in my journey, some that I continue to take, and some that only helped for a little while, but not for the long term.

I’ve been a on a specific hunt to heal my brain, and improve my cognitive function, knowing that eventually I may actually have to relent to dementia or Alzheimer’s at an early age. I still leave that in the back of my mind. The MRIs don’t lie. I have a lot of black space in there, from the various abuses I sustained over my lifetime in my early years before I turned 28, that basically results in damage. Science has proven, that abuse in many forms is just as damaging to the brain just as much as the many concussions that I have suffered in my lifetime. I can at least count 5 maybe 6 total that I did suffer, that I remember.

My husband is also 18 years my senior. Don’t worry we were well beyond the ages of we didn’t give a shit when we fell in love, and age wasn’t a consideration, and still isn’t today. When it comes to my venture into the world of supplements, he’s been ALL in for choosing this over the millions of doctor appointments and tests that had not been getting me anywhere.

I became essentially my own guinea pig, and I’ve been following a regimen for over a year now, and when I stopped the regimen, I suffered memory loss, cognitive dysfunction, headaches and the like, I recently returned to my regimen before I was confident in finishing the book I was writing and beginning the blog you are now participating in reading.

I very well may be on this supplement train forever, but not without all the research that led me to the supplements I’m on. Remember, I’m allergic to just about everything. I have to carefully find things, that are peanut, shellfish, yeast free and gluten free for the most part. I also have to avoid medications and supplements with ACIDS (lets not forget my bladder disease).

Today, my husband and I have ventured onto the train of Butea Superba, because PubMed has literally published articles, verifying that this tubular root, has the potential to literally be a turning point in Alzheimer’s Disease treatment and prevention. So, sign us up, no questions asked. The various other articles tell you about how it helps erectile dysfunction as well as it being nontoxic to the various patients that were tested, and so on.

With our hereditary backgrounds, we know that it very well be in the cards for us, so cognitive decline is what we are preventing. So, we have chosen this supplement specifically. I’ve done the studying, and I’m not a doctor, but it never hurts to try.

Yes, that black space is not supposed to be there, that’s supposed to be full of white matter.

Never Listening = Natural Remedies

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So with no meds…. where do I go from here? My search for healing starts with Amazon…

You are going to see ads for the things I’m using, and feel free to do the same research that I did. I’ve spent hours, days, months, but feel free if you would like to start reading the medical journals like I did.

If you have gotten to this blog, and you’ve followed all the blogs since I have started, you are going to realize that I have a HOST of ailments, along with Mast Cell Activation, Fibromyalgia, and Neuropathy, Paresthesia, and Interstitial Cystitis of the bladder, so this woman has literally been researching all the systems on Google and reading the articles, to find NATURAL remedies that didn’t require me to ingest allergens, and acids. Neat little fact, I’m allergic to peanuts, trees, grass, oh and some fungus (due to the mold) and YEAST, yes, I’m allergic to the yeast that grows in our own bodies. Wrap your mind around that!

I’m not a webpage editor or anything, so if you just follow the links to the things that I found that help me, you can order them directly.

When you need a little pick me up…

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Green Coffee Extract provides Polyphenols important for Hypothalamus Function in your brain!

And when it comes to my brain I’m all about neurodegeneration and repair, so if you read up on this link, you’ll find why Polyphenols are important to me as well!

Nutrients for hypothalamus and pituitary gland production (medicalnewstoday.com)

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For Urinary Tract Health 1-2 tsp in warm water a day… is just as beneficial!

I really wish I would have learned about Forest Flame Tree powder also known as Butea Monosperma years ago, the benefits are amazing. Read up on the link below if you don’t believe me. It tastes similar to instant powder tea, so if you can make a shot in warm water and drink it quickly, it’s not so bad. You can visit the article link listed below, if you want to see the benefits for yourself.

https://www.researchgate.net/publication/333973413_Butea_Monosperma_Phytochemistry_and_Pharmacology

Another Bottle of Pills on the wall…

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Another bottle of pills…take one down, pass it around, another prescription to add to them all!

I have a shelf…. that holds EVERY bottle of prescription pills, that followed me everywhere along the way. If you see this shelf, it harbors, the pills, creams, powders, and various elixirs, some of them missing already, that carried me throughout this systemic illness. I don’t use them, some of them are a few years old, but when I was losing my mind, I was trusting that with each symptom, each prescription handed to me, would garner me a glimpse of relief.

Some of those pills did, some did not, and some made me feel like I was going blind, or various other side effects. I’m not saying don’t do what your physicians recommend doing, but remember, I don’t listen, and now I’m hard of hearing (at least in the left ear: never sneeze with a cotton swab in your left ear, you can pop your ear drum, you know that warning label… yeah you get my point)

That my dear is apparently your job, or your care taker’s job. Who has time for that? Well FIND THE DAMN TIME child, your momma isn’t going to do it for you. This was at the point, where I was taking my health into my own hands and REFUSED to let anyone put me in my grave early, or make me leave my kids when they need me the most, without putting up the biggest damn fight of my life. I was supposed to be dead by February of 2022, I’m still here bitches!

You get diagnosed with something like Early Onset Dementia, and literally you are lucky if you have 4 years left. Mind you, I still may have to relinquish to dementia, but dammit…not yet, not right now, I refuse. I am curious about that MRI though, if I have filled the black deficits in my head or not, or if they are getting worse. I do know one thing, this woman right here…. feels better than she has in years, and here I am writing the story to live forever on the interwebs. If you have found me, there is a reason…. stay tuned!!

I still don’t listen…

SpoonfulofDiva 1 Comment

(Sorry dad, it is what it is. I’m going to Google it.)

It’s a theme here, as you can see, I have a stubborn streak in me that is fierce. Refusing to listen as a child was my favorite hobby for many reasons. When these symptoms cropped up, I started Googling like hell, and that was the first thing I was told to STOP doing. Don’t Google it, don’t do what you pay the doctors to do.

Let me tell you this warning: If you Google, do it right. Google the system first, if you are losing blood after you’ve had diarrhea for days, search those webs for Gastrointestinal tract and start from scratch. The only way to learn about something is to gain the knowledge of its system and function first. Even though you own the car, and have for 7 years, doesn’t mean that you’ve ever seen the fuel light, or the little button that adjusts your gas pedal, but it MIGHT or MIGHT not be there, so remember this. Same with your body.

If you go for symptoms first, you’re going to panic, because every symptom is going to lead to a death-defying disease or illness. You’re going to be thinking that you’re in the midst of a heart attack, when you are literally just having heart palpitations because you just gave yourself a damn panic attack over searching the internet wrong.

I’ve spent years when my brain allowed me to have focus to read about the systems that were going awry in body. The doctors followed and treated my symptoms which found me a tiny bit of relief. Especially when it came to the GI tract and tachycardia, random rashes, and things they COULD treat. I say the things they COULD treat, because there’s one thing about me that they couldn’t really treat, and that was my dying brain. I had two MRIs and was scheduled for a third but got cancelled during the pandemic.

The first was to find my baseline 80 yr old brain. The second was to ck the possible (TBI traumatic brain injury) concussion that I had suffered from a fall when I lost function going down the stairs in my garage. Ever know why a dog won’t sit its arse directly on a concrete floor when it’s cold out? Well, I know now, and that shit is not pleasant, get the dog a damn rug. The third, was for yet another concussion, when I slipped on the ice at my new job and smacked my head so hard, that the officer who witnessed it turned his vehicle around, and asked if I needed EMT, but alas, when you are the only manager in the store with a key, I opted to just go on my merry way with my damn headache.

In my defense, my thought process was at the point where another blast to my head wasn’t really going to hurt, since that particular area that I had smacked on the iced over pavement, just so happened to already be missing brain matter there, so it probably won’t hurt much. *Insert sarcasm here* No dad, it didn’t “knock anymore sense” into my thick skull either, at least I don’t think so…I guess, this is where you can actually remind me that I don’t have a PHD, so you are absolutely correct there, I’m still not a doctor. However, we never got that MRI rescheduled either, we’ve had a few insurance changes since then, thanks to my hubby’s employer so, I’m going to wait this one out just a little bit longer, until our insurance changes again, probably another year, as it will probably take me six months just to get to see my neurologist again.